Episode 13

Navigating Life with Congenital Heart Disease and Cerebral Palsy with Amelia Christie

Published on: 26th March, 2025

In this episode, Amelia Christie opens up about her journey as the mother of a child with both congenital heart disease and cerebral palsy. She shares the challenges and triumphs her family has experienced while navigating complex medical diagnoses, advocating for her son's health, and finding strength in the face of adversity. Through this conversation, listeners gain valuable insights into the realities of caring for a child with multiple health conditions, the importance of support systems, and the power of resilience.

https://www.jumpchildrenscharity.co.uk

https://www.clairehouse.org.uk

https://www.alderheycharity.org

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The SEND Sofa

One day last year after another overwhelming morning trying to get my distressed SEND son into school, I came home, slumped on the sofa and sobbed. I was at my wits’ end. I didn’t think I could do it a second longer. It made me think of all the other struggling SEND parents out there, possibly on their sofas, crying too. If I felt overwhelmed, so did they. If I was struggling, perhaps I wasn’t alone. The responsibility and pressure of raising a SEND child can sometimes be too much. How could I bring us all together? I wiped my tears, got out my notepad and pen and wrote the first words that came into my head: ‘The SEND Sofa.’ Holy Shiz. It appeared I was about to start a podcast!

And here it is! My name is Tahnee Morgan and my world was rocked when my son, Max, was diagnosed with Kabuki Syndrome in 2017, a rare genetic disorder that affects just 1 in 32,000 births worldwide. In this podcast, I delve into the good, the bad and the ugly of SEND life. Everything and everyone is welcome here. The vibe is genuine, heartfelt and relaxed as I provide a much-needed safe and comfortable space for SEND families to be open and honest about their journey. I will be chatting with parents, medical professionals, therapists and practitioners to gain a better understanding of all things SEND, while having a giggle (or a good cry) along the way.

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Tahnee Morgan

Mum of three beautiful children, teacher, presenter, voiceover artist and of course SEND mum.